Monthly Archives: June 2014

Not Raining on My Parade!

Today I had an appointment with my neurologist. I knew I would have to sit and wait, well beyond the time my appointment was supposed to be. I was ready for that, with a book to read and my mobile phone to play with. A good doctor will always have lots of people sitting down waiting to get to see them, because they will be willing to talk more than a set length of time.

Earlier, last month in fact, I’d wondered out loud whether I actually needed to have this appointment. I’m feeling good, looking good, doing well with my MS medication – Gilenya. These little capsules, that I’ve been on for nearly two years, are doing the right thing for me, with no noticeable side effects.

So I waited with my husband, reading my book and fluffing about online with my electronic device. Then it was my turn to go in and talk to my neuro. He asked me a few questions, which I answered, then I asked him some questions, which he answered. I was shown a picture of my last MRI, which had white fluffy bits that he said was my MS, but that Gilenya was holding it at bay, and preventing relapses. I said I was glad about that.

The upshot of all of this was that we decided I didn’t need to see him again for two years. I’m happy about that. I can wasted my time more comfortably at home. And when I’m at home, I can get coffee whenever I want. So two years with no neuro visit, unless something crops up. My GP will be the one in charge of keeping an eye on things for me, not my neurologist.

My GP’s office is ten minutes away from where I live, not an hour’s travel by car away. I’m happy to travel that shorter distance. I know I have to keep an eye on things, with assistance from my GP. He’s a nice guy, I’m happy with this new situation.

If my life wasn’t going along so well, I know I would be able to keep in contact with my neuro. The sun is shining on my life, even though the skies are doing their winterish best to chill the happiness out of me. While I can do the things I want to do, and remain able to step out to do my writer/poet things, then my life is a sunshiny life. I hope it remains like that for a very long time …

Some New Ideas I’ve had about Lawn Bowls

Reasons why Lawn Bowls is My Kinda Sport

• There’s no running required at all

• There’s usually coffee and biscuits involved at some stage – sometimes actual meals happen

• It’s a brain game, not a brawn game, which suits the way I think of my abilities

• Most of the time, it’s a cheerful game, with both teammates and opposition congratulating for particularly good bowling

• Even if all looks lost, the final bowl can sometimes win a game

• Carrying the lawn bowls around from house to car to club is good for me

• There’s little risk of unseemly perspiration

• During a game, there are lots of opportunities to sit down

• If it gets too hot or too wet, the game is called off, and all can retire to the clubrooms

• I can still get useful practice going to the club all by myself – no-one else needed

The main thing I love about Lawn Bowls though is this one – Even though I have a chronic illness that sometimes affects me quite a lot, I can still play the game!

Next (Careful) Step – Study!

OK, so if I feel I have valuable skills, and I want to be able to use them to help others, what is my next step toward helping others on a formal basis? I’ve written about the most important things that have impacted my life in bad ways, and worked toward making the bad times better. I know the two different books I wrote about these two experiences have helped others.

The first of these self-published books was my first poetry collection “damaged children Precious Gems”, a collection focussing on child abuse and other sexual abuse. In spite of the subject matter, the collection is an inspiring look at my journey from being a victim to being a survivor. I have had lovely responses from others who have also suffered, and have been helped by my words.

The other book, more recently published, is “Mick, Jane and Me – Living Well With MS”. This book was launched last year. It is a memoir talking about being diagnosed with multiple sclerosis. It was written in verse, and has poems I wrote about relevant things. It also has cartoons, lovey cartoons opening each chapter, by cartoonist Simon Kneebone. Again, people have told me they have gained comfort from reading my words.

My next step is not going to be another book; my next step is going to be continuing my schooling. I have completed Community Service Work Cert IV at TAFE, and in July I am going to commence studying for the Diploma of Counselling, also at TAFE. I feel I was always going to end up being a counsellor, and it feels good to have begun the process of becoming one. I’ve let this be known to others, family and friends, and the general feeling is that I will be well suited to doing this.

So that’s it – no more spending hours on Facebook and Twitter, it will be study, study, study! I’m excited about this and looking forward to attending classes again.