How Up Close & Personal Should I Go?

Don’t get excited readers, this blog is not about to get smutty. That would embarrass me and my family unnecessarily, and I’m not going there. It’s not that kind of close and personal I’m going to write about here! In fact the subject I want to write about here is as far from sexy as you can get.

The personal stuff is about my bowel and bladder. Go on, log out if you think you’re going to get grossed out. But if you too have up close and personal issues ,from your insides misbehaving, you may find some things you can relate to. I’m not saying I can solve your problems, but as you will see, I’ve had to learn some things about these issues …

I have MS (multiple sclerosis). I have a variety of things that don’t work as well as they used to because of having MS. For instance, all of my fingers and toes tingle, all of the time. I have a level of muscle weakness on my right side. I have some cognition ‘issues’ ie, if you rely on me to remember something, it may or may not happen. Hot weather or stress make my symptoms worse.

These issues aren’t good, but I’m dealing with them OK. I’m on a medication that is easy to take – Gilenya which is a small capsule taken in the morning, every morning. This medication seems to be working very well for me. It doesn’t work well for everyone, and I feel sorry for them, and hope for the best for them in their search for their best medication. There are more and more medications making their way to the Australian system …

I was previously on a different medication. This one was Avonex, which was an injectible – into muscle, once a week. This meant I had to inject stuff into my thigh muscle, either left or right thigh. I was going OK with that, doing it for two years, but the immense feelings of relief I felt when I was going through the wash out period before beginning my snazzy tablets told me the true story. I’d been managing, but not as well as I’d thought …

Anyway, I’m going well, able to walk a reasonable way, and able to keep on doing stuff through the afternoon and into nighttime. That’s great – my non MS stuff takes me out at night sometimes, and I’m glad I can do it all now. But … Isn’t there always a ‘but’ in stories like this? The ‘but’ is that my body hasn’t taken complete control over two parts of my body, the two parts that are most likely to cause me intense embarrassment. Can you guess what those two parts may be yet? Yes, that’s right, my bladder and my bowel.

‘Accidents happen’, is an old saying, and sadly, for me the saying isn’t so old. Accidents happen for me, not every day, but often enough to be a bother sometimes. And some of these accidents can be embarrassing in the extreme. Fortunately for me, I’ve been able to keep the ‘Oh dear’ level relatively low, but I don’t know for how long. My worst ‘Oh dear’ happened on the way to an MS event one evening. I ended up having to investigate the back streets on my way, and was very grateful for poor night lighting in that particular back street. It was a wee accident, not a poo accident, and I managed to get away with no-one else noticing, thanks to my recovery actions …

I know I should always ‘go’ before I go but sometimes I forget, and sometimes the travel just takes too long. Other accidents so far have only happened at home, and I’ve been able to do the clean ups myself. It’s not a thing to be proud of, really, or is it? I’ve managed to clean myself up, without having anyone else put out by having to look after me. So maybe it is something I can be proud of …

Wees and poos happen, as a natural part of life. I’m just going to go on trying to keep them at a relatively clean and tidy part of life. Most of the time when these accidents happen, it’s because I’ve ignored the messages my body has been sending me. So this is my message to anyone reading this blog post – your body knows a lot about you, and when you pay attention to what your body is trying to tell you, things will go along better.

Having said all of that, I have to confess that I have no real excuses to have too many actual accidents – I receive a payment from the government to assist with various pads etc. Sometimes I’m too vain to use them, and yes, that’s when I sometimes pay the price of clean ups …

So, listen to your body, and don’t be too proud to use help when you have it. Incontinence can be a game changer if you don’t take care!

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2 thoughts on “How Up Close & Personal Should I Go?

  1. Beverley Harris

    I know all about these problems but have nearly solved the bladder problem by having a catherisation inserted that I have changed every five weeks at the local hospital . I look after the rest myself it is a indwelling Cather. I am getting out much more as I don’t have to look for Loo’s and sleep all. Night now. So that is one problem solved but the other is a bigger problem but like you can clean up my self I have lots of showers, who h is very tireing but we have to keep going, you take care and I am willing to talk if you. Need to.good luck Beverley Harris

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  2. carolyncordon Post author

    Hi Beverley, thanks for popping in and leaving your comment. I’ve certainly heard of indwelling Cather. At this stage, I don’t think I need to do that, but I’m very glad that option is there.I certainly hope to keep on going for a long time to come. Cheers to you and keep on doing all you love to do!

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