Monthly Archives: January 2021

A Response to a Challenge

I left a comment on a friend’s blog post and he wondered whether anyone had ever written an ode to a their Cleaner. I thought about it briefly, because I love to rise to writing challenges. But writing an ode didn’t appeal, and I immediately decided I was going to write an ‘Acrostic Poem’ to my Cleaner.

Photo by cottonbro on Pexels.com

And so once I had some time, earlier today, that is what I’ve done, written about it, including an Acrostic poem today to Debra, who is my cleaner. I haven’t known her for very long, but it feels like we’ve known each other for ages, in good ways!

This is the poem I wrote, and some more details:

An Acrostic Poem to Debra, my wonderful Cleaner. I have written this poem in response to a comment from John Malone on his blog, suggesting I, or someone, write an ode to their cleaner. And as I wrote first up, I can’t resist a writing challenge! But I’m more interested in more Short and Sharp poems, rather than odes, which can be quite long, I think, and so have gone with An Acrostic Poem. Acrositic Poems can be quite short.

Here is my Acrostic Poem, Debra:

DEBRA

Dust disappears, and dirt dissolves

Everywhere she’s been, order reigns –

Beautiful person, I’m loving her here,

Relaxed that she fits in so easily & well,

And thrilled my cleaner is now a friend!

In the piece that John wrote, he talks of how he spends ages making things clean before his cleaner comes, and I have to admit, I do the same thing. Other people on his blog post confessed to doing the same thing too. Even though I know Debra is going to clean things up better than I ever will, I still do a little bit of tidying up …

Some Private Things

When you have Multiple Sclerosis (MS), you are likely to have tingly and or numb hands, feet or other places. You may have ‘food drop’, or fall over far more other than other people without MS do. Or you might have muscle weakness, and drop things a lot, or even be unable to walk. You have have problems with your eyesight, showing at its worst as blindness. These are all troubling symptoms and if you have them I am sorry for you, it sure isn’t a good thing. I’ve had or still have some of these things.

But all of these things will bring you sympathy from most people except horrid people who don’t care about anyone else. I hope I don’t have such people here, reading my blog posts. Anyway, back to the theme for this blog post … The things listed may well bring sympathetic responses, and that is a good thing. But the trouble with MS is that there are other symptoms too, that certainly won’t bring such sympathetic responses from the average person, not unless they are particularly understanding people or have experience with the some symptom. They may instead bring disgust.

And if you haven’t guessed it yet, that particular symptom is ‘continence issues’. Really though, continence isn’t a problem, it’s actually INcontinence that is the problem. Continence is: ‘the ability to control movements of the bowels and bladder.’ So yay to everyone with that ability, no problem there. The actual problems come with Incontinence, when that wonderful control to corral those movements to do their thing if and when you want them to get a move on, is absent.

When those naughty contents just up and move away from the bladder and or bowels, and head on out of the body when and if they darn well want to, that’s incontinence. So yay to you, if you have that incontinence thing happening, you have my utmost sympathy, even in your most unlovely of moments. I am on your side, I know how it feels. 

Bladder and bowels are great when they work properly, processing the heck out of food and drinks, taking out the good stuff for your body to do all of the good things it does, to keep you going. And then after, hanging onto the waste for removal at the proper time, and in the proper place, Yay body, thanks, great work. But sometimes, oh sometimes, the call of your bladder and or bowels may not be heard by your brain, and things may get a move on with no control at all, that waste just decides to rampage outa there and whoosh, off it heads, and the waste goes where waste is certainly not supposed to go!

If you’ve been there, you know what? I’m there with you, and I know how it feels. Dignity is the thing us disabled people want to hold onto, and respect too. But it’s hard to hold onto your dignity, and to get respect, when you’ve just pooped and/or pissed your pants. But you know what else? If it’s happened to you, and you’re still there, going out, risking further ‘incidents’, good on you, you have the dignity of a person who will take a chance, and do something, instead of hide away, coward-like. And you have my respect, because I know how hard it is to get clean and tidy after such an event. The world is not set up to help you with that one, unless you make the first moves to get things happening in that regard. 

Continence aids, pads, pants, catheters, are available, if you know what you need, and where to get them. I know the MS Society in South Australia and the NT have a special nurse who is there to help people with their problems with incontinence. The nurse is called a continence nurse rather than an incontinence nurse, I suppose because her tole is to help clients to be continent rather that INcontinent. It makes sense, looking at it like that. And in Australia, there are various government things, to assist with the costs.

Anyway, to finish things off, and lighten the mood a little, I am a poet, as well as a blogger and writer, so here is a little poem of mine I wrote a while back. I hope you like it! And if you are in a group that would love to have me come and talk to people about this kind of thing, contact me, I’d love to be there with you. Just tell me where the toilets are when I arrive!




On ‘Going’ …

You’d better go, before you go,

‘Cos if you don’t, well you know

You might be left with penny unspent

& it’s too late, if you already went!

NDIS Plan Changes …

So today my Support worker and I looked at my current plan, and the things I actually need right now. Some of the things from my previous plan were short term plan things, and/or are no longer needed. So there will be a new plan created for me to approve or change, and then have submitted.

My new plan, if approved will lead to more relevant things happening, more things that will help me be the vibrant/ connected person I want to be! Dealing with this awful current Covid situation has slowed, or stopped some things, but many other things can still happen.

Having my support worker there, working through these things is awesome, and I am more than happy to have her there helping me. She understands how to wade through the forms required, because she’s been dealing with the NDIS for a lot longer than I have, in a variety of ways.

I very much endorse the idea of having such a person on your team of supporters, if you have the NDIS, or wish to look at the possibility of going onto the NDIS. There is necessary monetary assistance to people with disabilities, but you have to know how to get it … The website – https://www.ndis.gov.au/ has lots of information, but if you are looking to, or are involved in it, having a helper who understands it is great!

For non-Australians information, the NDIS is the National Government program to assist people with disabilities live as ‘normal’ or good a life as possible. It is a fine thing, if you know how to work your way through the website, or have people with you who do.

Things Are On Track

So, it’s a new year, things are starting up again, and my NDIS things are about to get a bit of a shake up. I’ve been toddling along, happy to have a cleaner and a support worker who both come here every fortnight, it they can. I’m happy with their work, and the system for paying them, and getting the money from the NDIS is working well.

But this year, the year 2021 I’m looking for bigger and better things from the NDIS. I have ideas and am looking to making plans for those things. What I want most in my life, that is impacted by my chronic illness, is finally going to come to the forefront of things for me, if the plans that are beginning to come into fruition.

I feel good about this plan, and I hope, with my support workers assistance, it can happen for me. The horror year of 2020 is over, 2021 is here, and good things are on their way. If this all happens, all the good things that can come from the NDIS, will happen.

So I’m on track with the NDIS, things are going well, and about to get even better, by the looks of it. My situation shows how much better things can go, if your have good support workers, working with you, and understanding more about who you are, and what you want and need, for your best possible life!

And isn’t that what the NDIS is about, giving people with disabilities their best possible life?