I have known of my Multiple Sclerosis (MS) for ten years, being diagnosed in February 2010. That diagnosis did not frighten me, it actually soothed my fears. Many other people will say something similar to my response, on being diagnosed with an illness. The human mind is often capable of thinking of things far worse than the reality of a situation. So I had MS, instead of the brain tumour, or stroke that I had feared.
The neurologist, which quickly was shortened to neuro, prescribed a medication to assist with the symptoms I was experiencing, and so began my life, of living with MS. It was a very much scaled back kind of life, but not completely, I found a different life, one connected with a new cohort, the world of disability, and I began this blog, as a needed entertainment when getting about had become much more difficult.
So blogging took off, with this one, and the book I wrote, a memoir of my new life, that gave this blog its name became an important part of my writing life. It’s good book, that looks at many of the changes there are when a diagnosis of MS comes along. It’s my personal story, as it seemed to me, and it’s real, with some very things not usually spoken of in polite society …
My medication has changed since then, from the original Avonex injections once a week, to the current Gilenya tablet take once a day. The injections lasted for two years, and while I was managing with them OK, it was a huge relief to change, and pop a pill, instead of jabbing myself in the thigh … These tablets are working even better for me too, and sometimes it’s almost like I don’t even have MS.
But there are other reasons why I doing so well too, I think. I have a good, nutritionally sound diet, I don’t over do the alcohol, I don’t smoke. And do my best to live a stress free life, whilst also staying involved in doing the things I love to do, and to have a purpose in my life, doing good things for others. I am the Editor of the monthly newsletter for the closest town, Mallala, and this role takes in my love of writing, and editing, and my enjoyment from helping out my town.
So my diet includes red wine A small glass every few days, dark chocolate (most nights, just a little) some grains, nuts, some fruit, more vegetables, especially leafy green vegetables, all in moderation, with some exercise, also in moderation. My prescription for a healthy life! Lately, I’ve been in locked down mode, because of Covid-19, so my exercise is often just walking more than usual, up and down inside the house for 300 steps, then 300 steps on the back veranda and around the back yard, the same on the front veranda.
I’m hoping I might actually switch on the Wii Fit machine some time soon, but I just don’t feel like doing that. I know I’ve definitely put on some weight though, so I’m definitely aware that I need to do more than I’d been doing at the start of this Covid-19 time …
So that’s it. I’m not saying that’s what I always do, but it’s what I aim at doing. Having a purpose in life is important too, beyond simply existing. That can be many different things, as long as they take you further and higher than simply being.