When you find out you have a Chronic Illness, such as Multiple Sclerosis (MS), Chronic Fatigue Syndrome, Traumatic Brain Injury (TBI), and others, you will probably try to find out all you can about your new ‘life issue’. You’ll search for it on the internet, via search engines, and follow up on all of the links you find. You’ll ask your medical people about it, I’d expect too, and you’ll quite likely check out Facebook pages related to your illness.
These are good ideas, the more you know, the better decisions you can make, but you know what? These sources of possible assistance can only help up to a point. And you may find the people round you may take it upon themselves to help you too. It’s human nature to want to fix things for other people, for some people, and that is a lovely thing, quite often, but only up to a point.
Some people have minds that are closed to other possible actions rather than their own ideas, on ways to fix things. But much of the time, our problems are well outside of the understanding of such people. They can be dismissive, ignorant, and simply won’t listen to you if you try to explain how it actually is for you. These people can be irritating in small doses, and postitively toxic in larger doses.
The people who can really help you are the ones who know what it’s like, because they are living though the same things as you. Only a person with MS, for example, knows what it feels like to try to continue on through a bad time of MS Fatigue, when your whole body, all the way through to your bones, feels tired … Having friends who truly know, and who really do understand, can be a life saver! You will have at least those people who know what you really mean when you say, no, I can’t, I’m too tired.
If you have one of those ‘invisible’ chronic illnesses, as such as MS, etc, you must remember to care for yourself first, and others after, otherwise you will burn out and have nothing left for anyone, including yourself.
If any of this rings true for you,l please, feel free to comment here, and add to the discussion!