Tag Archives: memoir about multiple sclerosis

A response to my book

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I recently sold a copy of my book to a lovely lady who lives overseas. When you’re a self-publisher with a minimal budget for marketing, sales are always good. But when one of the sales is from someone you only know through a group you’re both members of online, then it’s something extra special! 

Barb Ann doesn’t have MS herself, but she has a friend who has it. This friend is doing it tough at the moment, and Barb Ann is hoping my book might be of help in some way for her friend. I hope it has that effect too. One of the reasons I wanted to write this memoir was to bring a sense of “not being alone” to other people burdened with this disease.

Barb Ann got back to me once the book arrived, and then again after she’d had a chance to read my words. I was thrilled with her response, and asked if I could share with others what she wrote. Barb Ann was more than happy for her words to be shared, so here they are!

 “I enjoyed your book immensely. All done with humor, honesty and encouragement. No matter what the challenge someone is facing that person could read your book and get good vibes.”      Barb Ann, St. James City, Florida

 

From my connections with Barb Ann, she seems a lovely person – it’s so good to know there are lovely caring people all over the world!

 

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On getting a gig to talk about my new book

Well, today I was at the Gawler Poets at the Pub Poetry Reading, which I help to run. My co-cordinator and I worked out what we’ll be doing for the next two months, October and November. Gawler Poets at the Pub is on from 2 pm – 4 pm on the last Sunday of every month except December, at the Prince Albert Hotel. I’m thrilled to be able to announce that for the October session, I will be the guest poet, talking about my just released book, Yay!

My book is a memoir, written in verse and with some poems included. It deals with my new life, living as well as I can with MS. Multiple Sclerosis is many things to many people. For some people, it is a huge problem, but I’m one of the lucky ones. Yes, MS brings me challenges, but I’m doing my best to meet those challenges, and continue living a life that works well for me.

People have told me I inspire them, and I’m glad they feel like that. I don’t feel that special, but if others think I am, then who am I to argue! 🙂 If reading my book can encourage others to live a better life, a happier life, a more positive life, then I am happy, my role in life is working. I am here to help others, and writing and sharing my words is my favourite way of helping.

If you would like to hear more about my lived experiences in life, feel free to contact me. I am keen on furthering my public speaking appointments.

 

 

On Contemplating Another Print Run

When one is a self-publisher, one is in charge of making all of the decisions regarding the published book. My most recent book, the one this blog is all about, has been launched and bought by others. It’s been sent to libraries, and now my job is to sell or find new homes for copies of my book. 

The selling is going well, as far as I know. I have copies out in various places, available for purchase, and I am yet to check up on how those sales are going. That will be a task for next week. I plan to visit most of the MS Peer Support groups in South Australia (the ones that aren’t too far away). Another task for next week then is to contact all of the groups I want to visit, and arrange things…

This is fun stuff, and I’m very much looking forward to meeting up with friends, both ones I already have and others who will become friends once we meet! One of my big decisions to make soon, is when or whether to order another print run of my book. The initial print run was for 100 copies, and I now personally have about twenty copies left in my possession.

The MS Society SA & NT will have an article about my book in its next issue of Network Magazine. I expect I will receive some enquiries from people about getting hold of their own copy, well, that’s what I HOPE for anyway! 

This is fun, and I’m being careful about the money received from book sales, so I can pay for the next print run. I was fortunate, and was the recipient of a ‘Choice’ award from the MS Society SA & NT. My award went to having 100 copies of my verse memoir about my new life with MS, printed for free. The printer was the Society’s printer, and I’m thrilled with the great job they did printing this book.

For my next print run though, I will have to pay for the printing. At this stage I don’t know what it will cost. So another task for next week, or the week after, is to ring the printer, and talk costs with them. I’m looking forward to getting it all going…

The photo here is me making a point at my book launch. 

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photo by Martin Christmas

A Sneak Peek!

So, why am I here, and why have I put this picture here?

Well I’ve written a book, you know, a memoir about my life with Multiple Sclerosis. And people with Multiple Sclerosis need walking sticks, right? No, wrong, actually. People with Multiple Sclerosis (MS) may need walking sticks, or walking canes similar to the two I’m holding in the picture. Or they may need walkers, or even wheelchairs. To be honest, I’ve certainly used the two mobility aids I’m holding triumphantly here. But Mick (the Stick) and Jane (the Cane) are no longer needed by me every day. In fact, I can’t really remember when I last used either of them to help me stay upright and moving.

I’m happy to report that I’m able to move about with no mobility aid at all. I occasionally think afterwards, or during the event, that it would have been handy to have one of these two friends with me. I’ve recently managed some walking and gallery touring without falling victim to the horrible consequences of gravity. Gravity and I have had a rocky relationship over my life. I had my first introduction to its danger with a fall as a child. I have a poem about that incident in my memoir – this is the poem, one written many years after the fall.

Gravity Hurts

At

the age

of seven

I learnt more

about gravity in

my nano–second

fall from our backyard

pine tree than I could ever

learn

from

text

      book

                      or teacher

So that’s a little bit of a sneak preview of my memoir, where I write about my life with MS. There are good things there, bad things, philosophical thoughts and more practical things. I needed to know these things back in 2010, when I was first diagnosed with MS. It took a while, but I’ve been working at learning about MS, and what it’s like to live with MS, ever since my diagnosis. I hope my memoir can be a fun way for people to learn more about what it’s like to live Well with MS.

My life is a good one. I’m able to do most of the things I want to do. Mick and Jane both helped me to walk better when I was diagnosed, and now they’re helping me in another, fun way – they help me to talk about my book! If you have a Mick or Jane of your own, or you know someone who does, I hope my words can assist you to have a fun and enjoyable life!

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