Tag Archives: NDIS funding

NDIS Plan Changes …

So today my Support worker and I looked at my current plan, and the things I actually need right now. Some of the things from my previous plan were short term plan things, and/or are no longer needed. So there will be a new plan created for me to approve or change, and then have submitted.

My new plan, if approved will lead to more relevant things happening, more things that will help me be the vibrant/ connected person I want to be! Dealing with this awful current Covid situation has slowed, or stopped some things, but many other things can still happen.

Having my support worker there, working through these things is awesome, and I am more than happy to have her there helping me. She understands how to wade through the forms required, because she’s been dealing with the NDIS for a lot longer than I have, in a variety of ways.

I very much endorse the idea of having such a person on your team of supporters, if you have the NDIS, or wish to look at the possibility of going onto the NDIS. There is necessary monetary assistance to people with disabilities, but you have to know how to get it … The website – https://www.ndis.gov.au/ has lots of information, but if you are looking to, or are involved in it, having a helper who understands it is great!

For non-Australians information, the NDIS is the National Government program to assist people with disabilities live as ‘normal’ or good a life as possible. It is a fine thing, if you know how to work your way through the website, or have people with you who do.

Things Are On Track

So, it’s a new year, things are starting up again, and my NDIS things are about to get a bit of a shake up. I’ve been toddling along, happy to have a cleaner and a support worker who both come here every fortnight, it they can. I’m happy with their work, and the system for paying them, and getting the money from the NDIS is working well.

But this year, the year 2021 I’m looking for bigger and better things from the NDIS. I have ideas and am looking to making plans for those things. What I want most in my life, that is impacted by my chronic illness, is finally going to come to the forefront of things for me, if the plans that are beginning to come into fruition.

I feel good about this plan, and I hope, with my support workers assistance, it can happen for me. The horror year of 2020 is over, 2021 is here, and good things are on their way. If this all happens, all the good things that can come from the NDIS, will happen.

So I’m on track with the NDIS, things are going well, and about to get even better, by the looks of it. My situation shows how much better things can go, if your have good support workers, working with you, and understanding more about who you are, and what you want and need, for your best possible life!

And isn’t that what the NDIS is about, giving people with disabilities their best possible life?

After Recent Neuro Visit

Today I had my annual visit to my neurologist, and I have to report I am more or less happy with the result of it. I had my muscular abilities tested (arms and legs) my eyes too. He always does these tests.

I measured up well enough that he certainly seemed perfectly satisfied with how I’m going, as I am too, for the most part. But visits to this specialist tend to leave me slightly dissatisfied, in minor ways. I feel it’s because I feel like I’m wasting his time, perhaps, and my own time too.

What do I expect from my MS specialist? I’m not sure. I do know that he is good at his job, and knows his stuff. I am on the best medication for my Multiple Sclerosis (MS), and that is because that is what he offered to me, once it came out in Australia. Gilenya has been great for me.

My blood test results are good, and I feel pretty good too. I certainly have some problems, health-wise, but only minor ones, compared to what many are faced with, who also have MS. I do feel that particularly in regards to my mobility, I’m going well. There is certainly no need for a wheelchair for me, no need at all.

grayscale photo of wheelchair

Photo by Patrick De Boeck on Pexels.com

I don’t do marathons, that’s true, and doubt I could manage one, but doing marathons has never ever been on my list of things to do. If I wanted to do one, I feel that, with a good physio advising me, I could do one, (after lots of training!). It isn’t something that interests me at all though.

I’m more a brain type, not a brawn type. I only want to be physical enough to be able to walk around, drive my car, and get lids of jars if my husband isn’t around assist! If I were to lose my ability to get around, that would be a huge impact on my life, for sure. But at this stage of my life, it isn’t looking like that will happen, not for a long time yet, anyway.

The issues I have with MS that are troublesome tend to be related to incontinence, and that isn’t something that’s terrible pleasant to talk about, but we did discuss it briefly, and he reminded me it’s something we spoke of at my previous appointment. I indicated the issue has worsened a little, but when he suggested a couple of things, I let him know I was happy enough I had the problem under control, really.

When he mentioned Botox as a possible treatment, I let him know I was definitely not interested in that. I feel my problem is more a muscle related one, and doesn’t need Botox, if anything, it may benefit from training in pelvic floor muscle exercises. Apart from that, as I told my neuro, I have funding from the NDIS to assist with pads to assist with continence.

So basically, I actually have things under control, and am not interested in the things suggested. Is that why I feel that tiny bit of dissatisfaction? These visits to see my specialist are not free, and I didn’t have private health insurance, they may be less than easy to pay for. So do I feel I’m wasting my time and my money going to see him?

Well sort of, to some extent, but not really. I think it’s good that there is feedback between my GP and my specialist. My GP does the getting my blood tests organised, and has the results sent to my neuro. My bloods are good, going by my most recent tests, no negative affects on my liver, etc. All good.

So really, going to see my neuro annually is fine. If and when I have any more pressing issues, I know he’s there to investigate things that are beyond my GP. Do I need any more than that? No, not at the moment. Maybe my whinging is because most of my health issues are simply because I am getting older, and I don’t like that fact?

Yeah, that’s probably that, as well as my neurologists less than soothing ‘bed-side manner’. He is blunt, not rude, or anything, just straight forward and honest. Ah well, such is life, I’ll suck it up and be grateful for my good fortune, and stop being such a sook!