Tag Archives: NDIS

NDIS Plan Changes …

So today my Support worker and I looked at my current plan, and the things I actually need right now. Some of the things from my previous plan were short term plan things, and/or are no longer needed. So there will be a new plan created for me to approve or change, and then have submitted.

My new plan, if approved will lead to more relevant things happening, more things that will help me be the vibrant/ connected person I want to be! Dealing with this awful current Covid situation has slowed, or stopped some things, but many other things can still happen.

Having my support worker there, working through these things is awesome, and I am more than happy to have her there helping me. She understands how to wade through the forms required, because she’s been dealing with the NDIS for a lot longer than I have, in a variety of ways.

I very much endorse the idea of having such a person on your team of supporters, if you have the NDIS, or wish to look at the possibility of going onto the NDIS. There is necessary monetary assistance to people with disabilities, but you have to know how to get it … The website – https://www.ndis.gov.au/ has lots of information, but if you are looking to, or are involved in it, having a helper who understands it is great!

For non-Australians information, the NDIS is the National Government program to assist people with disabilities live as ‘normal’ or good a life as possible. It is a fine thing, if you know how to work your way through the website, or have people with you who do.

Things Are On Track

So, it’s a new year, things are starting up again, and my NDIS things are about to get a bit of a shake up. I’ve been toddling along, happy to have a cleaner and a support worker who both come here every fortnight, it they can. I’m happy with their work, and the system for paying them, and getting the money from the NDIS is working well.

But this year, the year 2021 I’m looking for bigger and better things from the NDIS. I have ideas and am looking to making plans for those things. What I want most in my life, that is impacted by my chronic illness, is finally going to come to the forefront of things for me, if the plans that are beginning to come into fruition.

I feel good about this plan, and I hope, with my support workers assistance, it can happen for me. The horror year of 2020 is over, 2021 is here, and good things are on their way. If this all happens, all the good things that can come from the NDIS, will happen.

So I’m on track with the NDIS, things are going well, and about to get even better, by the looks of it. My situation shows how much better things can go, if your have good support workers, working with you, and understanding more about who you are, and what you want and need, for your best possible life!

And isn’t that what the NDIS is about, giving people with disabilities their best possible life?

New ‘Normals’

One thing many people don’t realise is that people with a disability or injury, may never return to how they were ‘before’. How they are right now, may be as good as they’re going to get, and that is their new ‘normal’. Expecting them to be how they were ‘before’ won’t help and is likely to be a hindrance, bad for them, for you, for everyone.
I’m not writing this as a woe is me thing, because in fact I’m going well, compared to some other people living with what I have, but that is not something I can rely on staying that way, and I am a lucky person, with plenty of people who help me to live a good life, with Multiple Sclerosis.
Many other people with this disease are struggling, with no real help from anyone, and I feel for anyone trying to live their life like that, because if you have MS, stress can make everything so much worse. I have my husband, my family, many good friends, and some absolutely great friends. I also have the NDIS which I will be using more often, later in the year.
I am able to do do many things I love to do, and this is definitely an important aspect of why I’m doing well. If I had had a full time job when I was diagnosed, particularly if it had been a job I loved, but was getting harder and harder to do well, that would be a very stressful thing.
I had more or less retired from ever having a full time job and have been happy doing volunteer things related to writing, as well as being a freelance writer in a (very) casual way. This means if I don’t feel up to doing something, I don’t have to do it, almost always. I can make a bit of money from my books, or from doing online surveys, which I have a silly love for! These little bits of money help me to feel worthwhile, financially, and my volunteer things help me to be useful in the broader community.
These are good things for a person with a disability. Feeling useless never helps anyone, and doing things (as long as they are still enjoyable and feel good to you), this is a great positive thing, that brings on feel good chemicals in your body, endorphins. When you help other people, or when others help you, you can have a release of these good chemicals in your body, and feel good, for hours afterwards.
And while these are good things, they are not going to bring back to where you used to be, if, for instance you have MS, as I do, or have for instance an acquired brain injury. The best way to go with people dealing with these things is to talk with them and listen, actively pay attention, and try to understand what their ‘new normal’ is. These people will know themselves better than anyone else will, to a large extent.
If someone says they can’t do something because they’re not feeling like they can, believe them. Don’t cut them off, but don’t harass them either. Just because they did something one, day, doesn’t mean they can necessarily do it another day. And just because they didn’t couldn’t do it one day, doesn’t mean they won’t be able to do it another day. Just ask, they will know better than anyone.
So I have a good life, I understand my abilities and my limitations, and I do my best to extend my limits as much as I can. I am living a good and worthwhile life!

The Strange Things I Know About

Call Me the Poo and Pee expert!

I had a session today, with one of the people at the MS Society, in their new venue. Because I’d never been there before, I left in plenty of time, and found the place easily, so was early. My phone ‘told me where to go’, politely of course!

Because I was there early, I was able to have a cup of coffee and an apple. They were both free, which is always nice, when you’re living on the Disability Support Pension! The apple was there in a delicious looking fruit bowl, to help to promote Bowel Cancer Awareness Month, and because I was at the MS Society to discuss continence issues, it was completely pertinent.

Continence, or more correctly perhaps, incontinence, can apply to both the bladder and the bowel, and it means when, what I’m going to call pee and poo, arrive too fast, when we don’t want it to, then the resulting unpleasantness can occur.

And of course, we all know just how unpleasant poo and pee can be, when you’re not actually sitting on the toilet seat, (or squatting outside in the bush). And unfortunately, it seems to be true that people with MS are more likely that other people to suffer from these embarrassing issues.

Getting help

The reason I was at the MS Society, was to look into the best options available to assist with dealing with any potential messy problem. Incontinence isn’t a really big issue for me, but it is a sometimes problem, for sure. If I can get a pad/liner to help me, I want to get the one that suits me the best.

I have been approved for financial assistance from the NDIS, and I am glad that I am able to be reimbursed for my money spent to keep things nice! The MS Society worker is looking into method of payment for continence support items for me, and will get back regarding it.

And I wanted to discuss the whole incontinence thing. From how the discussion went, I’m doing the right things, to assist my own body with these things. I drink plenty of water, and have a good amount of  fibre in my diet. The correct amount of water is 30ml for every kg of body weight.

How Much Water is the Right Amount?

So my weight is around 56 kg, so I should have around one and a half glasses (250ml) of water. This amount of fluid can include two cups of coffee in a day, but after that, the caffeine causes excessive urination. So it looks like my current amount of water/fluid taken every day is about right.

I usually have 2 or 3 cups of coffee every day, with about 4 or 5 glasses of water. Another way to check on whether intake of water is sufficient, is too check the colour of your urine. It shouldn’t be the colour of cider, or apple juice it should be a lighter and clearer straw colour. So, if you want to check your situation, just take look, before you flush!

Drinking enough water can assist with preventing Urinary Tract Infections too, and that is not a pleasant thing to suffer from at all. Since I began drinking more water over the past couple of years, I haven’t suffered with one of those nasty infections, and I am very glad of that.

In summer, especially if you spend time out in the heat, your sweat will take away some of your water intake, so you must remember to drink more water. Also if you are working out, running, or being active working in the garden, the yard, and so on, then you must keep up your water intake.

There are many kinds of drinks for sale to ‘keep you hydrated’, but simple tap water is the cheapest method, so really, you don’t need any fancy drinks, just water. If you want water with a bit of kick, try a squeeze or squirt of lime of lemon juice, delicious!