Yes, I have a chronic illness, Multiple Sclerosis (MS) and it is an illness that doesn’t have a cure still, because the experts in such things aren’t sure what causes this illness. But they do know ways that may assist those of us suffereing from and with the various things having MS brings – muscle weakness, and fatigue are my main two symptoms. There are others for other people.
So I have MS, I’ve known that since I was diagnosed by a neurologist in 2010, and when he suggested I try a medication to assist, I was keen to stop myself suffering even more than I was at the time. So I began using one of the medications then available, Avonex, which was in the form of self-injection once a week. I don’t know really, what Avonex did, but it seemed to help, but those weekly injections were horrid.
When a new nedicaion came along, a capsule to swallow once a day, I happily changed my MS medication. I’ve been on this new med, Gilenya, since 2012, and I’m loving it! Sure there are a few after effects, and things my GP and I are keeping an eye on, but overall, this medication has been great for me.
But there are other things I can do, to keep well, too, and because I’m keen to keep mobile, and not needing a wheelchair, I do these other things, at least sometimes. One of the things my Neurologist told me right from the start, was that I should keep on walking, I can’t remember for sure if he actually gave me a distance to walk, but it may have been at least 500 metres, every day. So I do that, if not every day, then lots of days.
I’ve recently begun counting my steps and recording the number of steps taken, using the pedometer on my phone, and that’s working well. I measured the lengeh of my step, and every step is half a metre, so if I walk 1000 steps, I’ve walked 500 metres. I’ve written a bit about this, this morning, this is what I wrote:
– 1200 steps done, now having a bit of a rest … Missy was looking at me as if I was crazy, briskly walking all around inside, one end of the house, to the other, and back again, but she doesn’t face the truth of the bathroom scales every morning. I do, and even though I know why I got today’s result, I want a lower number tomorrow morning.
And walking more means I can go on walking, and I definitely want to retain my mobility. I don’t need to go to any expensive gym, walking briskly inside and outside my home is enough, and I may add in some hand weight lifting later on today too, coupled with paying attention to what I eat, and reaching my ideal weight will be my birthday present to myself!
Two months to go, I can do this!
So that was this morning, and I will indeed lift those hand weights a little bit later today, and I will eat a healthy and light lunch, with vegetables and a little bit of fruit, as well as nuts, seeds and wholegrains, as is my usual lunch at home. I’ve been weighing in almost every day for the past couple of months, and I have a target weight in mind. I’m already within the healthy weight range, but at the top of the range, and I want to be in the middle of the range instead.
So if I am going to give myself the birthday present of reaching my goal weight, I have to get off my bum, and get moving around more, and keep on eating the best and most nutritious foods I can, and probably giving up the daily, small amount of chocolate would be a good idea. Perhaps once a week for the chocolate, as a reward if I’ve lost a bit of weight, would be a good way to go. Or as a reward for a certain number of extra steps walked might be an idea, as long as my weight was at least not much above, but preferably below, the previous weekly weigh in result.
If I eat well, exercise more, and maintain a positive attitude to life, who knows the ongoing benefits I’ll achieve! So far, apart from some skin cancer issues, which my GP and I are dealing with, my health is remarkably good. My heart rate is good – steady and slow, cholesterol fine, and my attitude to life is strongly Positive Polly, not Moaning Myrtle! I have family and friends who love me, I’m financially well enough off, and have little to worry about, apart from these skin cancers, but as I said, that’s more or less under control
So that’s my MS life at the moment – Do my best to be my best, and loving the life I’m currently having, apart from those yucky spider leg stitches on my hand! I’m keeping out of the sun a lot more these days, but there was so much damage done out in the sunshine as a kid, all those fun and free, sunshiney days …