Category Archives: ideal life

Health Care Plan for MS

Yesterday I checked in with my doctor, to get a new health care plan set for the following 6 months. I saw the clinic nurse there first, and we got some numbers and thoughts organised. The scariest number was my weight, where the scales at the doctors confirmed more of less the horror of our family Wii Fit machine told me about a couple of days before. I could blame winter for my increase in weight, but of course, it’s because of me.

Yes, winter is a time for staying inside, and for eating comforting foods that often have more calories in them than are useful if you want to stay slim … Salads are summer food, cakes, muffins and fat-laden main courses are winter food. But it isn’t winter now where I live, it’s Spring. and salad, warm salad, can be eaten at any time. So yesterday, when I went to my fave cafe (Poetic Justice, in Gawler), I had a small warm salad, and only looked at the yummy muffins and cheesecakes in the display cabinet …

But Spring weather, when it’s as lovely as it is today, that’s good weather for getting outside and actually doing things, physical things. So today, that’s what I did. Before I did that though, I did something even better. Today I began, yet again, my Wii Fit exercise program. I’ve said I’ll do it so many times, it’s beginning to bore me to write the words. But this time, I’ve told the clinic nurse and my doctor about it, and it’s written down on my notes at the clinic.

So this morning the machine went on, I weighed in, cringed a little at the result, and then did 31 minutes of exercises – Yay to me! It wasn’t the hardest workout I’ve ever done, but it was a good workout and I sure knew I’d done something! I burned 74 calories in that time, and that’s certainly more calories than I would burn sitting on my bottom and typing a little bit!

So that’s today done, except that because it’s Spring, and a lovely Spring day at that, I went outside and actually did some things, as I wrote before. I did one of the Wii Fit Yoga exercises ‘Salute to the Sun’. I did that about five times, and it felt good to be stretching my muscles in the sunshine. After that, I went to the dog run we have, and I pulled up some weeds. This is another bit of a bend and stretch type of exercise, and it’s always good to get rid of the weeds I was focused on, with is the oxalis, which has seeds that are a menace for anyone with animals that have long hair, as our schnauzer does …

So my health care plan is under control, my mind is in a happy place, and my body, even though it doesn’t work as well as it could, still works well enough for me to do everything I want to do – my Mind, Body and Spirit are all going good!

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What Does MS Stand For?

A good question, with many answers. The real answer is that it stands for Multiple Sclerosis. That’s a pretty boring name though for a really strange disease. There are lots of far more interesting answers, and I like to play with words, so here are a few of my alternate answers.

My favourite answer that I tell myself is that MS stands for Mighty Special, because I reckon that most of the people I know who are living with MS are mighty special people for sure! More Stupid is another possible answer though, because sometimes the cognitive problems MS can cause can take away your ability to give snappy answers and you’re left with dumb and slow answers because you’re brain and the nerves don’t work as well as they used to.

More Slow can be another answer at times too, because those nerves are slowed down and so your body is slowed down too. Magic Solutions is a more positive answer – having a chronic illness, one that might be with you for the rest of your life, can lead you to thinking up some amazing ways to get through your life in a good way.

Medical Swami – when you have MS, you may well have been through some of the medical ‘solutions’ that don’t cure you, but if you’re lucky, may help you with some of your symptoms of MS. So for some people, their medical people might look like some kind of wonderful people who can cure all that ails them. Time usually takes the shine off though, and the medical people become merely human again …

Another possible answer might be My Stash. Some people with MS find their own tablets, or foods, or something else they use to help, that they are sure their actual doctor/s may not approve of, so they don’t mention it to them. And hey, if that works for them, OK. It’s dangerous though, and it’s always best to check that things don’t clash with each other – bad things can happen that way.

My Supporters is probably the most important answer to this one. I love and cherish those who are helping me through this MS life. From husband, son, sofa dogs

dogs, mother, friends, and all of the people from the MS Society SA & NT who do great work to help those of us in South Australia and Northern Territory, and all of the other wonderful people working to help, I thank you all. Without the support I receive, my life would be a sad and sorry life indeed.

So that’s it from me, do you have any other answers you’d like to share with us?

Ah, Plans, Plans, Plans …

Well I was planning to do my Wii Fit exercises again today. I’ve stated elsewhere that I intend doing at least thirty minutes of Wii Fit three times a week, and aiming at upping three times to four times a week if at all possible. A fine plan, don’t you think? Yes, but plans are like clouds – they can look promising when you’re watching the sky for rain, but they can float past and give nothing …

So plans are good things to have, but unfortunately the best laid plans can end in nothing, as my plan to do my Wii Fit exercises today will not actually happen. I hope that tomorrow will be a better day for it, and I won’t fiddle about and run out of time for it in the morning, or that I will be able to fit it in later on in the day.

It’s not all a loss though in terms of exercise. I am emailed a Daily Challenge every day, from this website: https://challenge.meyouhealth.com
There are a variety of different ‘tracks’ to choose from, and when you sign up, you choose which track you wish to follow for a month, getting a daily challenge to complete and report on, on your page.

My challenge today was to toss a pillow, book, or similar thing into the air, clap my hands and catch the object. The fish here is the object I tossed up and caught. I did the right thing, throwing stripy up into the air, and caught him again the required five times, and threw in one or two more times, just because I could. It’s not a huge exercise, but it is a good one for working on my coordination, and I’m pleased with myself for doing it and not dropping stripy fish!

cute exercise partner

Today’s exercise partner

Stripy fish has also been a Christmas decoration – perched in our Christmas tree for a few weeks before and after  the Christmas period. It (I want to write he, but of course soft toys don’t really have a gender, not when they look like this one), it was a good choice as an object to throw into the air. My coordination can be a little dodgy at times and the threat of being hit in the head was there – it didn’t happen, but with Stripy, it wouldn’t have hurt either of us if my aim had been wayward!

So anyway, the Wii Fit may happen tomorrow, and I intend to do a little bit of extra walking today, choosing to park away from rather than directly in front of the cafe I’ll be at for a chat/group meeting at the cafe in Gawler I’m the Writer-in-Residence at. Poetic Justice Cafe Gallery is the cafe, a lovely place here art and good food are in abundance, and hugs and laughter often happen!

I have books there for sale, I hold a weekly Poetry workshop there, and I love the yummy cakes and things. And the coffee, oh the coffee – what writer doesn’t love to sit and think with a cup of good coffee close at hand? Bliss! So that’s it for now, I have to get ready for my ‘work’ at the cafe!

My Ideal Life

Have you ever thought about what your ideal life would look like? Is it anything similar to the life you have now? Is it even a possible thing, to live your ideal life?

I’m thinking about such things at the moment because, well because it’s still Christmas holiday time, and I’m at home with the computer and not needing to do anything much for the rest of the day … More particularly though, perhaps, I’ve been thinking about my weight, my health and what I can do so that I am happier with both of those things.

My weight is only a minor issue, I only have a few kilojoules I want to lose. My health though, that’s a different manner. When one has a chronic illness that causes a degree of muscle weakness and also fatigue, it might seem that physical exercise is just too hard to do. The reality though is something else. Doing more can lead to being able to do even more.

I’ve seen this happen for myself in the past. a couple of years ago, I was diligent in keeping up with my exercise program, and I was feeling physically much more able. Even now, when I think about some other people suffering from Multiple Sclerosis (my chronic illness), I am glad that I am still able to walk, drive my car, even run a little if I really need to. Some of the people I know with MS need wheelchairs, and I hope to be able to avoid that.

As I’ve said here previously, my neurologist, when he told me what was ailing me, told me to “Use it or Lose it!” That thought certainly kept me going when I got my weight down to its adult lowest weight. It was a little too thin I think though, and I wasn’t eating enough nutritious food – vegetables and so on.

Anyway getting back to my ideal life – My current level of physical ability is OK, but ideally I would be able to easily go up and down stairs, and walk for miles. In my ideal life, I will wear size ten clothes and look great in them – no muffin top, with my jeans fitting me well, a little bit loose to be comfortable.

In my ideal life I will eat plenty of healthy food – with an emphasis on vegetables. This will lead to healthy skin, bones, everything, and I will glow with good health!

Of course in my ideal life, I will also be a popular public speaker, talking about various aspects of my life, and being seen a a lovely and inspiring person. And of course, in my ideal life, I will have written more books, and sold more and more and more of them, online, in bookshops, at book readings and launches, through my websites and at public speaking events!

I’m heading in the direction of my ideal life. I’m not there yet, but I’m more or less working on it, in a way. I’m not widely famous and being contacted constantly for more public speaking gigs, but I’ve had a few of them, and I’m known as a published writer around where I live and beyond. I don’t have all of my books in lots of book shops, but I have some of them in some places, and in libraries in South Australia and other places in Australia.

But the most important thing I’m doing to get to my ideal life, I think, is that I’ve signed up with a program being run by the South Australian government – Get Healthy SA  I’ve only just started – the relevant ‘tools’ arrived in the mail, and I’ve begun working on my plans/goals/actions and so on. I have my own coach who will help me to fine tune them, I think. He will contact me again around the middle of January and we will talk about it all.

Another important thing I’m doing that is related to attaining my ideal life is the workshops I have begun presenting every Sunday morning in a cafe gallery I love, Poetic Justice Cafe Gallery in Gawler. I’m also the writer in residence there, twice a week, so that’s three days a week in a lovely cafe, with lovely food – it’s no wonder the weight is piling on.

The group I’m leading with their writing is inspiring though – they inspire me as I inspire them, so we’re all winning. All in all, if this isn’t my ideal life yet, it’s a pretty good life, that’s for sure!